Saturday, October 1, 2016

Susan Scheneider on Robin Williams / The terrorist inside my husband's brain

Robin Williams

The terrorist inside my husband's brain

  1. by Susan Schneider Williams, BFA
    1. Neurologyvol. 87 no. 13 1308-1311
I am writing to share a story with you, specifically for you. My hope is that it will help you understand your patients along with their spouses and caregivers a little more. And as for the research you do, perhaps this will add a few more faces behind the why you do what you do. I am sure there are already so many.
This is a personal story, sadly tragic and heartbreaking, but by sharing this information with you I know that you can help make a difference in the lives of others.
Robin Williams and his wife, Susan Schneider, in 2009.

As you may know, my husband Robin Williams had the little-known but deadly Lewy body disease (LBD). He died from suicide in 2014 at the end of an intense, confusing, and relatively swift persecution at the hand of this disease's symptoms and pathology. He was not alone in his traumatic experience with this neurologic disease. As you may know, almost 1.5 million nationwide are suffering similarly right now.
Although not alone, his case was extreme. Not until the coroner's report, 3 months after his death, would I learn that it was diffuse LBD that took him. All 4 of the doctors I met with afterwards and who had reviewed his records indicated his was one of the worst pathologies they had seen. He had about 40% loss of dopamine neurons and almost no neurons were free of Lewy bodies throughout the entire brain and brainstem.
Robin is and will always be a larger-than-life spirit who was inside the body of a normal man with a human brain. He just happened to be that 1 in 6 who is affected by brain disease.
Not only did I lose my husband to LBD, I lost my best friend. Robin and I had in each other a safe harbor of unconditional love that we had both always longed for. For 7 years together, we got to tell each other our greatest hopes and fears without any judgment, just safety. As we said often to one another, we were each other's anchor and mojo: that magical elixir of feeling grounded and inspired at the same time by each other's presence.
One of my favorite bedrock things we would do together was review how our days went. Often, this was more than just at the end of the day. It did not matter if we were both working at home, traveling together, or if he was on the road. We would discuss our joys and triumphs, our fears and insecurities, and our concerns. Any obstacles life threw at us individually or as a couple were somehow surmountable because we had each other.
When LBD began sending a firestorm of symptoms our way, this foundation of friendship and love was our armor.

Robin Williams and Susan Schneider,
Los Angeles, 2010.

The colors were changing and the air was crisp; it was already late October of 2013 and our second wedding anniversary. Robin had been under his doctors' care. He had been struggling with symptoms that seemed unrelated: constipation, urinary difficulty, heartburn, sleeplessness and insomnia, and a poor sense of smell—and lots of stress. He also had a slight tremor in his left hand that would come and go. For the time being, that was attributed to a previous shoulder injury.
On this particular weekend, he started having gut discomfort. Having been by my husband's side for many years already, I knew his normal reactions when it came to fear and anxiety. What would follow was markedly out of character for him. His fear and anxiety skyrocketed to a point that was alarming. I wondered privately, Is my husband a hypochondriac? Not until after Robin left us would I discover that a sudden and prolonged spike in fear and anxiety can be an early indication of LBD.
He was tested for diverticulitis and the results were negative. Like the rest of the symptoms that followed, they seemed to come and go at random times. Some symptoms were more prevalent than others, but these increased in frequency and severity over the next 10 months.
By wintertime, problems with paranoia, delusions and looping, insomnia, memory, and high cortisol levels—just to name a few—were settling in hard. Psychotherapy and other medical help was becoming a constant in trying to manage and solve these seemingly disparate conditions.
I was getting accustomed to the two of us spending more time in reviewing our days. The subjects though were starting to fall predominantly in the category of fear and anxiety. These concerns that used to have a normal range of tenor were beginning to lodge at a high frequency for him. Once the coroner's report was reviewed, a doctor was able to point out to me that there was a high concentration of Lewy bodies within the amygdala. This likely caused the acute paranoia and out-of-character emotional responses he was having. How I wish he could have known why he was struggling, that it was not a weakness in his heart, spirit, or character.
Susan Scheider, Robin Williams and Zelda Williams (2011)

In early April, Robin had a panic attack. He was in Vancouver, filming Night at the Museum 3. His doctor recommended an antipsychotic medication to help with the anxiety. It seemed to make things better in some ways, but far worse in others. Quickly we searched for something else. Not until after he left us would I discover that antipsychotic medications often make things worse for people with LBD. Also, Robin had a high sensitivity to medications and sometimes his reactions were unpredictable. This is apparently a common theme in people with LBD.
During the filming of the movie, Robin was having trouble remembering even one line for his scenes, while just 3 years prior he had played in a full 5-month season of the Broadway production Bengal Tiger at the Baghdad Zoo, often doing two shows a day with hundreds of lines—and not one mistake. This loss of memory and inability to control his anxiety was devastating to him.

While I was on a photo shoot at Phoenix Lake, capturing scenes to paint, he called several times. He was very concerned with insecurities he was having about himself and interactions with others. We went over every detail. The fears were unfounded and I could not convince him otherwise. I was powerless in helping him see his own brilliance.
For the first time, my own reasoning had no effect in helping my husband find the light through the tunnels of his fear. I felt his disbelief in the truths I was saying. My heart and my hope were shattered temporarily. We had reached a place we had never been before. My husband was trapped in the twisted architecture of his neurons and no matter what I did I could not pull him out.
In early May, the movie wrapped and he came home from Vancouver—like a 747 airplane coming in with no landing gear. I have since learned that people with LBD who are highly intelligent may appear to be okay for longer initially, but then, it is as though the dam suddenly breaks and they cannot hold it back anymore. In Robin's case, on top of being a genius, he was a Julliard-trained actor. I will never know the true depth of his suffering, nor just how hard he was fighting. But from where I stood, I saw the bravest man in the world playing the hardest role of his life.
Robin was losing his mind and he was aware of it. Can you imagine the pain he felt as he experienced himself disintegrating? And not from something he would ever know the name of, or understand? Neither he, nor anyone could stop it—no amount of intelligence or love could hold it back.
Powerless and frozen, I stood in the darkness of not knowing what was happening to my husband. Was it a single source, a single terrorist, or was this a combo pack of disease raining down on him?
He kept saying, “I just want to reboot my brain.” Doctor appointments, testing, and psychiatry kept us in perpetual motion. Countless blood tests, urine tests, plus rechecks of cortisol levels and lymph nodes. A brain scan was done, looking for a possible tumor on his pituitary gland, and his cardiologist rechecked his heart. Everything came back negative, except for high cortisol levels. We wanted to be happy about all the negative test results, but Robin and I both had a deep sense that something was terribly wrong.
On May 28th, he was diagnosed with Parkinson disease (PD).
We had an answer. My heart swelled with hope. But somehow I knew Robin was not buying it.

Robien Williams

When we were in the neurologist's office learning exactly what this meant, Robin had a chance to ask some burning questions. He asked, “Do I have Alzheimer's? Dementia? Am I schizophrenic?” The answers were the best we could have gotten: No, no, and no. There were no indications of these other diseases. It is apparent to me now that he was most likely keeping the depth of his symptoms to himself.
Robin continued doing all the right things—therapy, physical therapy, bike riding, and working out with his trainer. He used all the skills he picked up and had fine-tuned from the Dan Anderson retreat in Minnesota, like deeper 12-step work, meditation, and yoga. We went to see a specialist at Stanford University who taught him self-hypnosis techniques to quell the irrational fears and anxiety. Nothing seemed to alleviate his symptoms for long.
Throughout all of this, Robin was clean and sober, and somehow, we sprinkled those summer months with happiness, joy, and the simple things we loved: meals and birthday celebrations with family and friends, meditating together, massages, and movies, but mostly just holding each other's hand.
Robin was growing weary. The parkinsonian mask was ever present and his voice was weakened. His left hand tremor was continuous now and he had a slow, shuffling gait. He hated that he could not find the words he wanted in conversations. He would thrash at night and still had terrible insomnia. At times, he would find himself stuck in a frozen stance, unable to move, and frustrated when he came out of it. He was beginning to have trouble with visual and spatial abilities in the way of judging distance and depth. His loss of basic reasoning just added to his growing confusion.
It felt like he was drowning in his symptoms, and I was drowning along with him. Typically the plethora of LBD symptoms appear and disappear at random times—even throughout the course of a day. I experienced my brilliant husband being lucid with clear reasoning 1 minute and then, 5 minutes later, blank, lost in confusion.

Robin William
Watercolour by Paul Moyse
Prior history can also complicate a diagnosis. In Robin's case, he had a history of depression that had not been active for 6 years. So when he showed signs of depression just months before he left, it was interpreted as a satellite issue, maybe connected to PD.
Throughout the course of Robin's battle, he had experienced nearly all of the 40-plus symptoms of LBD, except for one. He never said he had hallucinations.
A year after he left, in speaking with one of the doctors who reviewed his records, it became evident that most likely he did have hallucinations, but was keeping that to himself.
It was nearing the end of July and we were told Robin would need to have inpatient neurocognitive testing done in order to evaluate the mood disorder aspect of his condition. In the meantime, his medication was switched from Mirapex to Sinemet in an effort to reduce symptoms. We were assured Robin would be feeling better soon, and that his PD was early and mild. We felt hopeful again. What we did not know was that when these diseases “start” (are diagnosed) they have actually been going on for a long time.
By now, our combined sleep deficit was becoming a danger to both of us. We were instructed to sleep apart until we could catch up on our sleep. The goal was to have him begin inpatient testing free of the sleep-deprived state he was in.

Robin Williams

As the second weekend in August approached, it seemed his delusional looping was calming down. Maybe the switch in medications was working. We did all the things we love on Saturday day and into the evening, it was perfect—like one long date. By the end of Sunday, I was feeling that he was getting better.
When we retired for sleep, in our customary way, my husband said to me, “Goodnight, my love,” and waited for my familiar reply: “Goodnight, my love.”
His words still echo through my heart today.
Monday, August 11, Robin was gone.
After Robin left, time has never functioned the same for me. My search for meaning has replicated like an inescapable spring throughout nearly every aspect of my world, including the most mundane.
Robin and I had begun our unplanned research on the brain through the door of blind experience. During the final months we shared together, our sights were locked fast on identifying and vanquishing the terrorist within his brain. Since then, I have continued our research but on the other side of that experience, in the realm of the science behind it.

Robin Williams
Poster by T.A.

Three months after Robin's death, the autopsy report was finally ready for review. When the forensic pathologist and coroner's deputy asked if I was surprised by the diffuse LBD pathology, I said, “Absolutely not,” even though I had no idea what it meant at the time. The mere fact that something had invaded nearly every region of my husband's brain made perfect sense to me.
In the year that followed, I set out to expand my view and understanding of LBD. I met with medical professionals who had reviewed Robin's last 2 years of medical records, the coroner's report, and brain scans. Their reactions were all the same: that Robin's was one of the worst LBD pathologies they had seen and that there was nothing else anyone could have done. Our entire medical team was on the right track and we would have gotten there eventually. In fact, we were probably close.
But would having a diagnosis while he was alive really have made a difference when there is no cure? We will never know the answer to this. I am not convinced that the knowledge would have done much more than prolong Robin's agony while he would surely become one of the most famous test subjects of new medicines and ongoing medical trials. Even if we experienced some level of comfort in knowing the name, and fleeting hope from temporary comfort with medications, the terrorist was still going to kill him. There is no cure and Robin's steep and rapid decline was assured.
The massive proliferation of Lewy bodies throughout his brain had done so much damage to neurons and neurotransmitters that in effect, you could say he had chemical warfare in his brain.
One professional stated, “It was as if he had cancer throughout every organ of his body.” The key problem seemed to be that no one could correctly interpret Robin's symptoms in time.
I was driven to learn everything I could about this disease that I finally had the name of. Some of what I learned surprised me.
One neuropathologist described LBD and PD as being at opposite ends of a disease spectrum. That spectrum is based on something they share in common: the presence of Lewy bodies—the unnatural clumping of the normal protein, α-synuclein, within brain neurons. I was also surprised to learn that a person is diagnosed with LBD vs PD depending on which symptoms present first.
After months and months, I was finally able to be specific about Robin's disease. Clinically he had PD, but pathologically he had diffuse LBD. The predominant symptoms Robin had were not physical—the pathology more than backed that up. However you look at it—the presence of Lewy bodies took his life.

Robin Williams

The journey Robin and I were on together has led me to knowing the American Academy of Neurology and other groups and doctors. It has led me to discover the American Brain Foundation, where I now serve on the Board of Directors.
This is where you come into the story.
Hopefully from this sharing of our experience you will be inspired to turn Robin's suffering into something meaningful through your work and wisdom. It is my belief that when healing comes out of Robin's experience, he will not have battled and died in vain. You are uniquely positioned to help with this.
I know you have accomplished much already in the areas of research and discovery toward cures in brain disease. And I am sure at times the progress has felt painfully slow. Do not give up. Trust that a cascade of cures and discovery is imminent in all areas of brain disease and you will be a part of making that happen.
If only Robin could have met you. He would have loved you—not just because he was a genius and enjoyed science and discovery, but because he would have found a lot of material within your work to use in entertaining his audiences, including the troops. In fact, the most repeat character role he played throughout his career was a doctor, albeit different forms of practice.
You and your work have ignited a spark within the region of my brain where curiosity and interest lie and within my heart where hope lives. I want to follow you. Not like a crazed fan, but like someone who knows you just might be the one who discovers the cure for LBD and other brain diseases.
Thank you for what you have done, and for what you are about to do.


Susan Schneider Williams serves on the Board of Directors for the American Brain Foundation ( but reports no disclosures relevant to the manuscript. Go to for full disclosures.


  • Go to for full disclosures. Funding information and disclosures deemed relevant by the author, if any, are provided at the end of the editorial.

Frank O´Connor / The Art of Fiction

Frank O'Connor
Poster by T.A.
Frank O’Connor

 The Art of Fiction 

No. 19

Interviewed by Anthony Whittier

Autumn-Winter 1957
The Paris Review No. 17

SCENE: Frank O’Connor is of medium height and build; he has heavy silver hair, brushed back; dark, heavy eyebrows; and a mustache. His voice is bass-baritone in pitch and very resonant—what has been described as jukebox bass. His accent is Irish, but with no suggestion of the “flannel-mouth,” his intonation musical. He enjoys talk and needed no urging regarding the subject of the  interview. His clothes tend toward the tweedy and casual: desert boots, corduroy jacket, rough tweed topcoat; and a bit of California touch evident in a heavy silver ornament hung on a cord around his neck in place of a tie.
Although a friendly and approachable man, O’Connor has a way of appraising you on early meetings, which suggests the Irishman who would just as soon knock you down as look at you if he doesn’t like what he sees. His wife provides a description of an encounter with a group of loitering teenagers while the two of them were out for a walk. A remark of some sort was made, O’Connor whipped over to them and told them to get home if they knew what was good for them. The boys took him in, silvery hair and all, and moved off.

Friday, September 30, 2016

Hemingway / The Art of Fiction

Ernest Hemingway
Poster by T.A.
Ernest Hemingway

The Art of Fiction 

No. 21

Interviewed by George Plimpton

Spring 1958
The Paris Review No. 18

You go to the races?

Yes, occasionally.

Then you read the Racing Form ... There you have the true art of fiction.

—Conversation in a Madrid café, May 1954

Ernest Hemingway writes in the bedroom of his house in the Havana suburb of San Francisco de Paula. He has a special workroom prepared for him in a square tower at the southwest corner of the house, but prefers to work in his bedroom, climbing to the tower room only when “characters” drive him up there.
The bedroom is on the ground floor and connects with the main room of the house. The door between the two is kept ajar by a heavy volume listing and describing The World’s Aircraft Engines. The bedroom is large, sunny, the windows facing east and south letting in the day’s light on white walls and a yellow-tinged tile floor.
The room is divided into two alcoves by a pair of chest-high bookcases that stand out into the room at right angles from opposite walls. A large and low double bed dominates one section, oversized slippers and loafers neatly arranged at the foot, the two bedside tables at the head piled seven-high with books. In the other alcove stands a massive flat-top desk with a chair at either side, its surface an ordered clutter of papers and mementos. Beyond it, at the far end of the room, is an armoire with a leopard skin draped across the top. The other walls are lined with white-painted bookcases from which books overflow to the floor, and are piled on top among old newspapers, bullfight journals, and stacks of letters bound together by rubber bands.
It is on the top of one of these cluttered bookcases—the one against the wall by the east window and three feet or so from his bed—that Hemingway has his “work desk”—a square foot of cramped area hemmed in by books on one side and on the other by a newspaper-covered heap of papers, manuscripts, and pamphlets. There is just enough space left on top of the bookcase for a typewriter, surmounted by a wooden reading board, five or six pencils, and a chunk of copper ore to weight down papers when the wind blows in from the east window.

Thursday, September 29, 2016

William Faulkner / The Art of Fiction

William Faulkner

William Faulkner

The Art of Fiction 

No. 12

Interviewed by Jean Stein

Spring 1956
The Paris Review No. 12

William Faulkner was born in 1897 in New Albany, Mississippi, where his father was then working as a conductor on the railroad built by the novelist’s great-grandfather, Colonel William Falkner (without the “u”), author of The White Rose of Memphis. Soon the family moved to Oxford, thirty-five miles away, where young Faulkner, although he was a voracious reader, failed to earn enough credits to be graduated from the local high school. In 1918 he enlisted as a student flyer in the Royal Canadian Air Force. He spent a little more than a year as a special student at the state university, Ole Miss, and later worked as postmaster at the university station until he was fired for reading on the job.
Encouraged by Sherwood Anderson, he wrote Soldier’s Pay (1926). His first widely read book was Sanctuary (1931), a sensational novel which he says that he wrote for money after his previous books—including Mosquitoes (1927), Sartoris(1929), The Sound and the Fury (1929), and As I Lay Dying (1930)—had failed to earn enough royalties to support a family.
A steady succession of novels followed, most of them related to what has come to be called the Yoknapatawpha saga: Light in August (1932), Pylon (1935), Absalom, Absalom! (1936), The Unvanquished (1938), The Wild Palms (1939), The Hamlet(1940), and Go Down, Moses, and Other Stories (1941). Since World War II his principal works have been Intruder in the Dust (1948), A Fable (1954), and The Town (1957). His Collected Stories received the National Book Award in 1951, as didA Fable in 1955. In 1949 Faulkner was awarded the Nobel Prize for Literature.
Recently, though shy and retiring, Faulkner has traveled widely, lecturing for the United States Information Service. This conversation took place in New York City, early in 1956.

Mr. Faulkner, you were saying a while ago that you don’t like interviews.

The reason I don’t like interviews is that I seem to react violently to personal questions. If the questions are about the work, I try to answer them. When they are about me, I may answer or I may not, but even if I do, if the same question is asked tomorrow, the answer may be different.

Wednesday, September 28, 2016

Grace Paley / The Art of Fiction

Grace Paley
Poster by T.A.
Grace Paley

The Art of Fiction 

No. 131

Interviewed by Jonathan Dee, Barbara Jones, Larissa MacFarquhar

Fall 1992
The Paris Review No. 124

When Grace Paley visits New York, she stays in her old apartment on West Eleventh Street. Her block has for the most part escaped the gentrification that has transformed the West Village since Paley moved there in the forties. The building where Paley lived for most of her adult life and where she raised her two children by her first husband, the filmmaker Jess Paley, is a rent-controlled brownstone walk-up with linoleum hallways. Mercifully spared mid-career renovations, Paley’s apartment retains the disheveled, variegated look of an apartment with children. Paley now lives in Thetford, Vermont with her second husband, poet and playwright Robert Nichols, but we arranged to speak with her in New York. We met her on the street outside her apartment—she was returning home from a Passover celebration with friends elsewhere in the city. We recognized her from half a block away—a tiny woman with fluffy white hair in a brown overcoat.
People often ask Grace Paley why she has written so little—three story collections and three chapbooks of poetry in seventy years. Paley has a number of answers to this question. Mostly she explains that she is lazy and that this is her major flaw as a writer. Occasionally she will admit that, though it is “not nice” of her to say so, she believes that she can accomplish as much in a few stories as her longer-winded colleagues do in a novel. And she points out that she has had many other important things to do with her time, such as raising children and participating in politics. “Art,” she explains, “is too long, and life is too short.” Paley is noticeably unaffected by the pressures of mortality which drive most writers to publish. Donald Barthelme scavenged her apartment for the stories that made up her first book, and her agent says she periodically raids Paley’s drawers and kitchen cabinets for material. Her first collection of stories, The Little Disturbances of Man, did not appear until 1959, when Paley was thirty-seven. Since then she has published just two collections of stories (Enormous Changes at the Last Minute in 1974 and Later the Same Day in 1985) and three collections of poems—Leaning Forward (1985). New and Collected Poems(1992) and Long Walks and Intimate Talks (1991). Though Paley is better known as a short-story writer than as a poet, her stories are so dense and rigorously pruned that they frequently resemble poetry as much as fiction. Her conversation is as cerebral and distilled as her prose. The oft-noted Paley paradox is the contrast between her grandmotherly appearance and her no-schmaltz personality. Paley says only what is necessary. Ask her a yes-or-no question, and she will answer yes or no. Ask her a foolish question, and she will kindly but clearly convey her impatience. Talking with her, one develops the impression that she listens and speaks in two different, sometimes conflicting capacities. As a person she is tolerant and easygoing, as a user of words, merciless. On politics Paley speaks unreservedly and in earnest, on writing, she is drier, more careful.
Grace Goodside was born in the Bronx in December 1922, seventeen years after her parents immigrated to New York and one year after the invention of the sanitary napkin (as she notes in her poem “Song Stanzas of Private Luck”). Her father, Isaac, was a doctor who learned English by reading Dickens and was, like her mother, Mary, a committed socialist. The family spoke Russian and Yiddish at home and English to the world with a Bronx twang that remains one of the more noticeable signs of Paley’s attitude towards the establishment. Writing has only occasionally been Paley’s main occupation. She spent a lot of time in playgrounds when her children were young. She has always been very active in the feminist and peace movements. She has been on the faculty at City College and taught courses at Columbia University, and until recently, Sarah Lawrence College.

Tuesday, September 27, 2016

Babies in boxes reveal extent of ongoing crisis in Venezuela

Newborns in cardboard boxes in Venezuela.

Babies in boxes reveal extent of ongoing crisis in Venezuela

A photo of six newborns in improvised cribs in a hospital has quickly gone viral

Caracas 26 SEP 2016 - 11:04 COT

A photograph has become the perfect testament of the scarcity Venezuelans are enduring. Six sleeping newborn babies in cardboard boxes in Domingo Guzmán Lander Hospital in Anzoátegui state (eastern Venezuela) provide a quintessential portrait of the current crisis in the oil-producing country. The picture has worn down the Nicolás Maduro administration’s efforts to beat back reports of total collapse. The image, taken on a cellphone, has quickly gone viral on the internet.

Infant mortality in Venezuela has climbed from 0.02% in 2012 to 2.01% in 2015

The government’s initial reaction has led to widespread criticism. Anzoátegui Governor Nelson Moreno said: “There’s no bad faith in that. If they are going to use a little box, they handle that little box with great creativity. They decorate it well, fix it up like a layette, and place it there, next to the mother.”
Yet the photograph is a true depiction of the consequences of the Venezuelan crisis. In August, the United Nations Rapporteur for Health expressed concerns about the rising rate of infant mortality in Venezuela, which climbed from 0.02 percent in 2012 to 2.01 percent in 2015. Last year, there were 243,638 births, and 4,903 of those newborns died, according to the Venezuelan Health Ministry. Doctors say infant mortality is on the rise because hospitals lack 85% of the medicines they need and they do not have enough supplies to meet minimum sanitary conditions.

The IMF estimates that inflation in Venezuela could reach 720% by the end of the year

As the medical crisis worsens, some say the Maduro administration has hit back against those who have reported such problems. Manuel Ferreira, director of human rights in Democratic Unity Roundtable (MUD), the Venezuelan coalition of opposition groups, says Domingo Guzmán Lander doctors have faced intimidation for taking the picture. The Venezuelan Institute of Social Security (IVSS), the group that manages the hospital, blamed a doctor for placing the infants in boxes. According to the government, there were seven incubators available last week. “The institute will take the appropriate administrative actions for this kind of mistake and will collaborate if other institutions need to make pertinent investigations,” IVSS president Carlos Rotondaro said. According to Tomás Guanipa, a congressman in the opposition, doctors suspected of sharing the photo were summoned to meet with the Venezuelan national intelligence service.

Cardboard coffins

Scarcity has become a normal part of daily life in Venezuela. The Maduro government’s failed economic policies and falling oil prices only make the crisis worse. Economic projections are discouraging. The International Monetary Fund estimates that inflation in Venezuela could reach 720% by the end of the year while its economy continues to rely heavily on dropping oil prices and imports. Economic woes serve to add to the social drama. Boxes are not only used to make up for a shortage of incubators in hospitals. Many families that cannot afford the high cost of wooden and brass coffins bury their dead in cardboard caskets.
The idea came from Barquisimeto, a city in the state of Lara, in midwest Venezuela. “Right now death impoverishes a lot. The green casket is economical and affordable for Venezuelans who do not have the money to spend at that time,” says Elio Ángulo, an urn designer.
English version by Dyane Jean François.